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3/16/2019

Topic Reading-Vol.2530-3/16/2019

Dear MEL Topic Readers,
Who is making money from your DNA?
Data monopoly doesn’t seem to be limited only to GAFA, Google, Amazon, Facebook, and Apple, or BAT, Baidu, Alibaba, and Tencent, at least for now. There are companies that are collecting and sharing DNA data from their customers who provide their DNA samples for diagnoses. Such diagnosis service providers not only make money by selling DNA analysis to their customers but also by sharing the data with or selling them to pharmaceutical companies like GSK, who try to develop more effective medicine or treatment faster at less cost.
That sounds like a decent business model because it could reduce the cost for both diagnosis and medicine. However, are those customers well aware of the fact that their DNA samples are used for other purposes by third parties? Also, are the data gathered by such method valid to develop medicine for anyone because the availability and affordability of such DNA diagnosis services are still limited to affluent, educated people who live in a small number of developed countries.
As the era of medical big data is on the horizon, it is a question of who should obtain, retain, and benefit from DNA sample data. Should it be private enterprises or public services?
Enjoy reading and learn what DNA samples could do to businesses and medical services.
http://www.bbc.com/capital/story/20190301-how-screening-companies-are-monetising-your-dna

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